Preschool and Autism: Visiting my Son's Class

Yesterday I had the pleasure to be a helping parent in my son's Autism preschool.  I've wanted to help out before but I've not had the time until now, and I'm very grateful I was able to help. 

It started with Warm Up, where my son (and other students) walk up some stairs, down a slide, jump on the trampoline, and finish up by checking their schedule.  My son didn't do too well here, because he was afraid I was going to leave him there.  Normally my son works well in the class, but he's very clingy to me and really wanted to have a full day just playing with me. 

When finished, we worked at Table Toys, where he showed me he is able to remove parts from his toy and put things back.  His teacher told me that he is the only one that has figured out how to do this, and she was impressed.  I told her I wasn't surprised, as he takes our vacuum cleaner apart at home, and then puts it back together again. 

Once finished, he had his potty time, which is part of his schedule.  It's all part of his potty training, which they are excited about.  So many students this year are being potty trained, and it's exciting.  If you have an Autistic child, you probably know how difficult it can be to potty train them.  If you don't, just imagine that your child isn't potty trained at 3-4, but rather 5-10.  Part of it is because they don't tell you they want to go potty, and part of it is because they are so involved in their current activity that they don't want to interrupt it by going potty. 

Next was more Table Toys until Circle Time.  Circle Time was interacting with each student with song, learning their Letters, Numbers, and Colors.  Things that are expected from Preschool and prepares the children from Kindergarten.  Once done, they had their sensory activities, occupational therapy, work on fine motor skills, etc.  My son loves going to the sand table, and had a blast.  He then did well with his glue and art, though he preferred to spread the glue on his arm (so he had something to peel off).  Then he spent time on the swing, which he absolutely loves. 

Then he had potty time again, and they played outside with the other preschool class which is either mixed or a neurotypical class.  They all had a blast, though my son tried to run out through the gate to get me to chase him.  I know, because he stopped just outside the gate and giggled.  Once done, he had snack time, and I got to see how they use his picture exchange to get him to ask for things.  I think Jonathan wasn't too excited about this because now I force him to use the pictures as home.  Once done, they had some more play time until their final circle time, and we headed for home. 

It was a great experience, because I got to see Behavioral learning in action, with Environmental applications and Contstructivist methods being used to help the children build on their successes.  While my State has a number of short-comings (like not viewing Autism as a medical condition), the Granite School District has a very well staffed and well managed Autism program for Preschool.  The teachers and Aides are excellent, and I'm grateful for their work. 

Health Care Reform: Why It Doesn't Work For My Family

Before you start blasting away at my statement above and claiming I'm an arrogant Republican sympathizer with little or no regard for the little people, let me tell you why it doesn't work for me. 

In the over 2,000 pages that this comprehensive health care reform bill has, there is not one mention of Autism being covered by health care.  Not one.  That means that of the over 300 million American citizens in this country, an estimate of 3 million will not receive the necessary diagnosis or treatment to become useful citizens.  Think of that number:  3 million. 

But, you might say, the status quo isn't any better, and I should be happy for those that will be covered for their colds, flu, and catastrophic, life-threatening illnesses that can bankrupt families.  My response is that you obviously don't have an Autistic child, and therefore are not aware of the expense that comes with the diagnosis. 

First, there is the diagnosis itself.  Most healthcare insurance companies do not cover the visits to a psychologist, each costing quite a bit.  Because health insurance doesn't cover the diagnosis, it therefore falls on the parents to fit the bill.  And if the psychologist can't pinpoint where on the spectrum the child is, that means more visits, and more added to the bill. 

Then there are costs with special schools, training, etc. that are all expensive because of the increased teacher to student ratio.  Sure, you may think it's an outrage that there are 30 children to one teacher in a typical classroom.  But imagine of each of those children were Autistic, unable to sit still, unable to look the teacher in the eye, and bursting out into rages of melt downs because of sensory overload.  You CAN'T have a high ratio of students to teachers for autistic children.  Therefore, schools cost more. 

Because the cost of schooling for autistic children are so high, often School Districts will not provide those services.  This means the children are either home-schooled or they are sent to very expensive private schools, costing tens of thousands a year.  It's like buying a new car and paying for it in cash EVERY YEAR.  And you don't get a tax credit for "cash for clunkers".  That doesn't work with education. 

Finally, there is the cost of long-term care.  Children with Autism will eventually grow up to be adults with Autism, adults with varying levels of ability based on the severity of autism on the spectrum.  As such, they need some sort of organized long-term funds to provide for them when you as the care giver has passed away.  Some States provide long term care, but how much longer if they start to cut into their services to balance their budgets?  It's a scary future out there for those who are in no position to protect themselves. 

So you can talk about the poor getting healthcare, you can talk about the historic focus of this bill that Congress is trying to pass.  But as I already have healthcare that covers my family, and as it doesn't help provide for the needs of my son at a National level, the bill does nothing for me.  It doesn't protect or provide for my son's condition, a condition that has been shown to be genetic in origin, and therefore truly medical in practice.

In short, the bill is flawed, and I have little hope of seeing any provisions added at a later date.  I'm sorry, Mr. President and all members of Congress, but you have failed my son in your efforts.  My son, and one percent of your children and grandchildren. 

That is why I can't get excited about Healthcare Reform. 

Genetic Testing for Autism Gets Better: The Chromosomal Microarray Analysis

US News and World Report is running this news story on a more effective genetic test for Autism. The report tells of the three genetic tests that were run:  G-banded karyotype testing, Fragile-X testing, and Chromosomal Microarray Analysis (CMA).  In the tests preformed on 933 people between 13 months and 22 years, the two earlier staples of genetic testing performed at 2 percent for G-banded karyotype testing and 0.5 percent for Fragile-X testing.  But the new CMA test performed at slightly more than 7 percent in it's matching of genetic diagnosis to behavioral diagnosis. 

This means that of all those tested, the new test was able to conclusively link a genetic, chromosomal aberration to Autism.  This is huge for genetic testing, as it increases reliability for the genetic test method more than three times.  But it's still a low number.  Very low number, making genetic testing still too costly and inaccurate overall when diagnosing autism.

So why is this news so important?  Because it shows that we as a society are coming closer to understanding Autism and it's genetic markers.  As such, we are starting to understand Autism more, and that means working on ways to help manage it in more severe forms. 

But what about those that cannot be genetically identified?  Well, again, it all comes down to how Autism is diagnosed versus a relation to the conditions in the nervous system that cause Autism's symptoms.  As I have mentioned before in a number of other Autism posts, the Autism Spectrum is huge, and is used to encompass several specific symptoms.  These can be sensitivity to sensory stimuli, lack of eye contact, lack of social skills, enlarged or denser brains, etc.

And as geneticists have pointed out, there are a number of genes (up to 22 now), of which any one can cause some or all of these symptoms.  And the more genes that are present, the more pronounced the symptoms.  And what's really interesting is disorders like Fragile-X, which causes run-away stimuli in the neuron synapse firing, causes the same or similar symptoms as the denser brain of the Autistic.  So how do you tell them apart, behaviorally?  You can't.  It requires genetic markers, such as standard facial compositions of those with Fragile-X, to tell them apart. 

And, of course, it all really comes down to how to help those with any disorder like Autism, and that's education.  Making education available to those with Autism to help them function in this world with their disorder (and not fight it) is the best possible option.  Part of that is through behavioral therapy, part of that is through family (particularly parent) counseling to help everyone become part of the educational process.

So I applaud those working on the genetic testing for Autism, to help locate those children who are in need at a very early age and prepare parents for their responsibilities early.  And perhaps, just perhaps, insurance companies across the country will understand that Autism is something that needs to be covered, at least to the point of diagnosis. 

Autism: No Resolution In an Hour, but a Life-Long Pioneering Trek

Recently I’ve been reading about the depiction of Autism, specifically Asperger’s, in the media. This character has elements of it, but it’s not openly discussed, this other child has elements of it, but the writers don’t want to pigeon-hole their characters, etc. And then I read that the show, Parenthood, based off of the movie of the same title, will have one of their children diagnosed with Autism. Apparently the concept was so ingrained in my concerns that I had a dream about such a sitcom.  The following were the results.

The parents discover that their child is different than other children, and want to know what to do. They go to the school councilor, who then tells them their child might be autistic, and recommend they see a psychologist. This is serious stuff, not a big laugh that you would expect, but sets the tone for what will come.

So the parents go home and talk with their friends and family about the “diagnosis” (note, they have not actually gone to the psychologist yet), and they start getting advice. The first thing that comes up, of course, is the threat of vaccines, and how vaccines are poisoning our children. One friend and/or family member tells them they need to sue the vaccine companies. Another friend/family member tells them they need to get some “healing crystals” to place around their child at night and around their neck during the day. This is to “heal the spirit” of the child and make her well. And yet another family member turns to the couple who is by now scared out of their wits, and tells them that it’s all heavy metals anyway, and they should have their child purged with chelation treatments. Where did they get all this great advice? From watching a talk-show's interview with some celebrity with little to no education.

The parents are by now really frightened, the wife is crying, the dad is numb. Now, here is the twist: the dad is a hypochondriac, and thinks taking pills are the answer for everything. He says they are going to his favorite pharmacy to get something to fix their child. The mother, still trying to work through her own feelings, doesn’t disagree and goes with him.

The “pharmacy” is a group of guys that love to see this particular dad come into the shop. He will buy anything they tell him, and they often prescribe placebo’s just to get the money out of them. The dad goes into the pharmacy and says, “My child has autism. What’s it made of, and how do we fix it?” The guys go through their usual made-up mumbo-jumbo and start prescribing more placebos for the kid, and the dad completely trusts them. He’s just about to place down his money when one guy decides to be responsible and actually looks up what Autism is, and tells the dad to go see a psychologist.

Finally, they go to see the psychologist, and they really learn what Autism is: a spectrum of disorders that show up in diverse ways, but yet tend to have in common social reclusion and slow verbal development. The psychologist then proceeds to tell them about the spectrum, and where on the spectrum their child is. The mother has a good cry, the dad nods, trying to take it all in, and the psychologist then gives them advice on which books to read, a special school they can go to, and a heavy bill because their insurance does not cover autism diagnosis.

But in real life, it doesn’t work like that.  There is no magic cure, and even the psychologists that diagnose the disorder do not have all the answers.  Autistic children are unique, each having similarities in behavior, and yet many have very different behavior traits that distinguish them from other children with Autism.  As much as we would like to have all the answers, we just don't.  And that's precisely why some snake-oil salesmen, I mean "doctors" are able to peddle their poisons to desperate parents and potentially kill or seriously injure children that most often cannot speak for themselves.  And these so-called Autism Advocates are able to get away with it, because they promise the "quick fix."

But just like other “serious” issues dealt in sitcoms, the reality of Autism isn’t something that can be “fixed” in a half-hour, or in an hour’s time.  Nor with a pill, or starving the child of vital nutrients, or any other nonsense these "professionals" have promised will "fix" our children.  Autism isn’t a sprint, like having a cold. It’s not a marathon, like raising a child to adulthood. No, Autism is a lifelong around the world trek on foot with bare feet. You feel every step, the warm steps on even concrete when things go well, the freezing steps on slick ice when your child has a meltdown in public and others around you assume you are a bad parent, and the bleeding steps on sharp rocks when you feel like no progress is being made as your child has a melt down in the middle of the night for no reason at all.

So I applaud shows that try to depict Autistics, and parents that have children with Autism. It’s good to help other parents know what we are going through, if only on a superficial level. But I don’t see how they can show the full experience in an hour and have people really understand what autism is all about. It’s just not possible. It’s not an hour’s Sprint. It’s not a week-long mini-series type marathon. No, it’s a life-changing trek of pioneering parents. They leave their blood and tears behind, sacrificing their all for their children. Sometimes this means losing loved ones to scorn, anger, or even having them give up on you. Sometimes it means sacrificing social events for the benefit of your child. But at least each step, each bloody, painful step, is a step forward. Our reward as parents? The eye contact. The hugs. The occasional, “I love you”. The giggle of a child that is happy and excited about learning something new, like going to the potty on their own. That is what I live for.

Autism and Alternative Therapies: The Dangers of Prescribing Without Evidence: Lawsuit in Chicago

The Chicago Tribune is running a story about two doctors who are being sued for prescribing a dangerous autism treatment: chelation.  The father claims that they based their prescription off of bad practices, and endangered his autistic son's life by forcing him to go through chelation treatments.  Both doctors have not responded to comment, as is expected for any pending litigation. 

Chelation, for those who are not familiar with the process, is a chemical treatment designed to force the body to excrete toxic metals through urine.  If not performed correctly, it can cause kidney failure, and death.  It is also a popular "treatment" for children with autism, as it's believed that heavy metals, like mercury, cause the condition.  This is based on research by Dr. Wakefield, who's research has been shown to be fraudulent.

At the heart of the lawsuit is the laboratory these doctors sent tests in for the boy, which use a questionable method to test for heavy metals in autistic children.  They give the children a chelation drug to force heavy metals out of the body through urine, and then compare the metal content with the metal content of a control without having taken the chelation drug.  This, of course, will show elevated trace amounts of heavy metals in the urine of the autistic child, which then justify a chelation regiment that is lucrative for the doctors and potentially deadly to the child.

The good news is the doctor's being made to answer for their conclusions.  There are so many snake-oil salesmen out there for autistic children, it's hard to know what is and is not a true treatment.  It's about time those who make drastic and life threatening decisions without taking into account the safety of the child be made to answer for those same decisions.  It is, after all, negligent, and should be criminal, to falsely propose "cures" without having the clinical evidence to back it up.  Of course, there is a lot of money in snake-oil, so I don't know if it will ever go away.  One can only hope.

As for the father conducting the lawsuit, you have my support, and my prayers are with you.

As for the doctors that performed this fraud:  Shame on you both.

Science and Autism: Sensory Integration Therapy, Vanderbilt's Wilkerson Center, and Real Research

CCN.com is running a story, Scientists look to help children with autism find a voice.  The article follows a child who has had communication issues because he was diagnosed with Autism, and was taken to Vanderbilt's Wilkerson Center to attend a special needs school.  This special needs school is performing research on various therapy methods that claim to help autistic children, so as to determine their effectiveness.  One such therapy is Sensory Integration Therapy. 

Sensory integration therapy basically places the child in a room where the entire experience is designed to work toward a single goal:  teach the child.  For instance, in the room a child may sit at a computer and learn words with pictures, and have a therapist sit with him to tell them what the word means (matching the computer).  Next, the student is given a book with sentences that contain all the words he has worked on, so that he can cement them into his long-term memory.  Sound familiar?  It's the same process one goes through when learning a new language.  And for autistic children, that is essentially what they are doing. 

The research is focused on not just checking to see if this and other therapies are effective, but what long term effects they have.  Part of that determination is a brain scan both before and after the therapy.  Because they are using scientific measurements, double-blind studies, etc., the research can therefore be trusted and parents know that it is both safe and effective. 

So why is Vanderbilt even bothering with this research?  Because, as their scientist put it:

"Families who have a child with autism face daunting challenges, says Camarata. "Because of this, they are often going to leave no stone unturned in their searches for solution. Unfortunately, there are a lot of fringe treatments out there, they aren't effective and haven't been scientifically validated."

With a week of a prominent celebrity with little education turned instant "autism expert", it's good to see that real research resumes and parents are willing to recognize the importance of safe, real studies over new-age hype.  There are so many snake-oil salesmen out there peddling poisons as autism cures, It's important that we have scientists like Docter Stephen Camarata out there who are concerned with protecting our children.  Better his protection then the desire to fleece families of all their money with empty promises and poison cures. 

Thank you, Dr. Camarata.  Our thanks go out to you and to your staff for the important work you are doing. 

Autism iPod App Review: Look In My Eyes, and Look In My Eyes: Cars: Unique Autism Apps

This week I got an email from the developers at FizzBrain about their apps for children with Autism.  They offered to give me some free time to try out their apps and consider writing a review.  I checked out the website and liked what I saw, so I replied and offered to try them out and review the app.  Here is the write-up they gave me about the games.

"Look in my Eyes," a game to help children on the autism spectrum

"Look in My Eyes" is a game for the iPhone and iPod touch designed to help children on the autism spectrum practice eye contact. The game rewards children for quickly focusing in on a person’s eyes. Through repeated practice we attempt to develop a habit that families can transfer to real life settings as they remind children to use the skills they have practiced in the game. The game makes practice fun as players use the points they earn to buy items for their own virtual world, such as a restaurant or autoshop - a unique reward system that grew out of our decades of classroom teaching experience (we are both teachers, one with a masters degree in special education). We have combined this experience with our extensive training in best education practices and many years of close personal relationships with children who have Asperger’s Syndrome and autism to create a social skills game we hope will benefit your child! We also have some promo codes available for free downloads to families who could benefit. Contact abbiejcort@msn.com if you are interested. We have many more games to come in the future so check back frequently. Read more about the games, read reviews from parents, and see screenshots at www.fizzbrain.com
or http://itunes.apple.com/us/artist/fizzbrain/id349835342

These two apps are designed specifically to help those with Autism and Asperger's to look someone in the eyes.  The idea is simple:  provide some detail in the eyes (in this case a briefly showing number), ask the person to identify the number, and they receive a reward.  Once they have built up their rewards, they can use it to "purchase" additional rewards. 

As those with Special Education experience will no doubt recognize, this is simple, effective, and commonly used Behavior learning techniques.  Ideal, I might add, for most if not all children in on the Spectrum.  It's not surprising when you learn that the developers have the benefit of a Masters in Special Education.  And it works.  It works very well.

I downloaded the apps and tried them on my son.  At first I just opened it and let him go at it, at which point he promptly switched out of it and into his favorite apps.  Realizing this will take some time, I then sat him down next to me, started an app, and played with it a little bit.  He then was hooked.  He didn't play it as it was designed to play, as he didn't really care about amassing the reward dollars.  Instead, as he is learning his numbers now in preschool, he did it purely for the number recognition. 

This is something the app doesn't advertise, and yet does beautifully.  My son is excellent with his letter recognition, and can't be tripped up with the wrong letter.  But he's not so strong on his numbers.  So the application does two things:  teaches him to look into the eyes of other children and adults, while also helping him with his number recognition.  It's brilliant! 

Now, I did bill these apps as unique.  Why?  Because they don't focus on communication.  At all.  Instead, they focus on behavior, which children with Autism really need along with their communication skills.  So while a lot of Autism billed apps focus on helping children recognize words, learn to speak, for speak for them, these apps help children deal with a basic social experience:  looking someone in the eye. 

I can highly recommend these apps for any parent with a child on the Spectrum.  Don't be surprised if they don't play the game as you would expect, but as long as they get the basic idea (look in the eyes, see the number, touch the number), you will see benefits.  I only hope to see more apps like this coming from the Autism community that focus on real social skills beyond simple communication. 

If you are interested in learning more about the applications, feel free to contact them.  They also said they would be willing to offer free promotional codes to parents to read the review on this blog, so if you are interested email Abbie at the address above, and mention the blog. 

Thanks FizzBrain for the work, and I'm looking forward to other programs you have coming down the pipe!

How I Would Use the iPad and Similar Tablets

Here is my problem:  I don't want to get another laptop, but I need a mobile device that will let me accomplish some specific tasks.  Tasks like writing and editing documents, surfing the web, checking and responding to email, watching videos and listening to music, and a number of other very specific tasks, and all while on the go.  I had hoped that the iPod Touch would take care of all that, but it's lacking in a couple of areas, mostly because while I like the virtual keyboard it's too small to type fast enough to keep up with my brain.  So, taking a page from Patrick Thornton's blog on how he would use the iPad, let me outline mine:

On The Go:

• The Bus and LightRail:  I currently commute using the MAX bus to TRAX up to the University of Utah.  Using a laptop is awkward at best, because of how close the seats are.  The frustration comes from the form factor:  the clamshell may allow for a touch-type keyboard, but it doesn't allow for easy use with the seat in front of me.  The iPod Touch works well in this environment, even when I am cramped in a corner, but the screen is too small for me to do any effective typing.  Unlike many younger than I am, I am not adept at "texting", and therefore my thumbs seem to be good for only one thing:  the spacebar. 
  
  It's in this case that a tablet with a virtual keyboard would be ideal.  It's small enough to pull out without taking too much effort, and typing on the screen within my lap would take less space than using a clamshell screen.  At this point, since I would naturally be looking at the right angle to my lap, I could see what I was typing without having to adjust a screen to the right angle.  Also, given 3G or the eventually promised WiFi on the bus system Internet access would allow me to be productive the minute I'm able to sit down. 
  


• The Car:  While I normally drive the car, and therefore never use mobile devices while driving, it would be nice to have a device with a large screen for the kids to see while driving.  Some have suggested that I get a DVD player, but I don't want to mess with DVD's, as my son with Autism tends to break them easily.  That's mostly why I opted for the Apple TV to begin with.  So while DVD's are out, I need another solution.  An iPod Touch works great for one child, but what about the other one?  Well, we could use two iPod Touches, but by that point we are pretty much spending the same amount for an iPad, which both could see.  Add a car mount to be between the front seats and an audio cable to pug into the car stereo, and the device starts to make sense.
  


• Walking:  Even my little 12" Powerbook G4 is pretty heavy when I carry it around, though it's dimensions are the same (if thicker) than the iPad.  The weight starts to tell when carrying books for students, note pads for book and software ideas, etc.  In fact, I often need to switch from my message bag to a backpack just to carry the laptop, power cable, etc. with me.  The iPad would take a lot of weight away, making my daily walks easier to manage. 
  


• Long Commutes:  I commute an average of 2.5 hours a day, it being about 1 hour 15 minutes (give or take) from my house to my office, and then the same back.  Long commutes mean the need for long battery life.  Here my iPod does ok, but the battery is really running low by the end of the day from all the activity I use it for, and that's with a 6 hour video time.  That's also roughly what most modern laptops get as well, though that is shortened by the boot/wake delay.  With a tablet that is always on and has at least 10 hours of battery life, I can not worry about having to charge the device at work as well as at home.  The benefits here is a device that is always on, therefore has no wait time. 
  


• Flying:  Occasionally my job requires me to travel.  Flying is troublesome enough without having to lug a laptop with me.  It takes up a lot of valuable space in my carry-ons, which I can use for something else.  A flat tablet would give me the work ability I would need while flying, and the long battery life would let me watch those videos I want to see.  And even if I needed to take a laptop with me, I would prefer to use a tablet in the cramped areas of the airplane (as I inevitably get to sit with the other larger guys on the flight) with more comfort than the clamshell form factor. 

In the Office:

• Notes:  Typing on a larger screen makes it easier to take notes than on my iPod Touch, and therefore would make it that much more useful than the iPod Touch. A laptop would be awkward to carry into a meeting, use, and set aside when not needed.  Not to mention battery life issues and the screen going blank when I don't want it to.
  


• Presentations:  Using a laptop for presentations becomes tedious, because it requires a lot of hookups and cables, a place to set it, and I become tethered to be within reach.  A tablet with a display cable that was long enough (or could be extended) to allow me to wander about with the presentation in my hands would make that much easier, even if all my slides were just in a PDF format.  I could simply swipe through each of them if needed.  Creating or editing presentations isn't that important, though it would be nice.  I have really wanted to have a version of PowerPoint or Keynote on the iPod Touch for a long time, if only just as a viewer.  Having it available for real makes it that much better.

At Home:

• On the Couch:  Right now having a laptop is not a good option for me while sitting at my couch with the kids running around, trying to get something accomplished.  You see, both my kids like to grab the screen and pull it down their way (opposite me) to see what I'm doing.  Almost immediately it means having to quickly stop their action, which gets in the way of what I'm trying to accomplish.  It can also potentially damage the screen (though to date I've been lucky with my PowerBook).  A tablet would make working from the couch with the kids much easier, as they can see what I'm doing immediately without having to move a screen or pull the thing out of my hands. 
  


•  Reading:  I am a prolific reader.  I love to read, and use my iPod Touch extensively for reading in both Stanza and the Kindle app.  I don't use a laptop because it's awkward to read from while sitting or lounging on the couch or bed.  A tablet of some sort would be ideal in this situation, where the clamshell form factor just isn't.  It also would beat out the smaller tablets because of real estate.
  


• Special Needs Interaction:  My son is autistic, and as such has very special needs.  Part of that is his need to find a way to focus his mind in order to calm down.  Currently the iPod Touch works for that, though it's very small and doesn't have much real estate for him to work.  I would never let him use a clamshell device because he would inevitably break the screen because it moves.  With a single tablet device with little to no moving parts all the concerns about his breaking is has been reduced.  He's very careful about placing large things like books down, and so wouldn't throw the iPad.  There are also several apps that are targeted directly to children and adults with Autism, making the iPhone OS an excellent choice for me.  Is anyone aware of Autism apps for Android?  I would like to know.

So what about the complaints against the iPad?

• No Flash:  I hate Flash, though not because of the platform, just for what it's used.  Flash to me means annoying ads that fly in front of text I'm trying to read for the news.  I don't play Flash games, and I don't use Hulu (I found it very unfriendly to use).  When we use YouTube as a family (such as viewing rollercoaster rides for our son), we use the Apple TV primarily.  Why do I like to avoid Flash?  Because it gets in the way.  Sure, other technologies will probably come along that the iPad supports that will get in the way to, but right now it's Flash that is my big complaint.  If there is a Flash only website, I tend to avoid it like I would lima beans.
  
  Some may say I'm missing out on the richness of the Web by avoiding Flash, but I would counter by saying they are missing out of my patronage by forcing me to use an intrusive program that defeats the purpose of visiting the site in the first place.  It would be like forcing me to install Adware just to use an operating system.  I would quickly find another operating system.
  


• No Camera:  I've never once used video conferencing, even when I had cameras.  Text typing tends to be faster, and I don't have to be dressed up or shave my face to use it.  Audio chat is fine too.  That, and I don't see video chat on a Tablet being very useful, because it would be hard to use the tablet still while talking.  Nope, for video chat, a clamshell format would be ideal.  And if I really want to video chat, it would be from my office on my iMac. 
  


• No Multitasking:  This isn't strictly true, as the iPod Touch already multitasks, in that I can get email, have a webpage load, play a song with iTunes, and still play a game.  It is more accurate to say that multitasking all apps is not available, and generally, I don't need to.  The only types of apps I would like to have multitask for me is a telephony app like a VoIP app, a voice chat app, or a text chat app.  Other than that, I don't use it a lot, and have learned to do without with these all running at the same time.  As I use one tool at a time, and don't use it much in the background until I come back to it, I don't really see the need for "multitasking".  How do you multitask with your mobile devices?  Let me know, because it would be interesting to see how people use multitasking on mobile devices.
  


• No Physical Keyboard:  This is true, though quite honestly I consider it a plus in my book.  I would much rather use an onscreen tablet than a clamshell while out and about, because it doesn't require as much space to use.  Why is that?  Because with a clamshell on your lap, you need to either lean back to see what is going on, or rotate the screen back (almost doubling the flat area of the laptop) to see what you are doing.  Nope, this is definitely a benefit of the Tablet.
  


• Closed System:  While I'm all for Open Source, and have taught and worked with Linux as an Operating System, for a tablet device to work well I think it needs to have a controlled environment.  Otherwise you start running into battery issues, performance issues, and all sorts of headaches.  I honestly think this is why Google has Android and their app store:  It keeps the apps somewhat controlled, and therefore controls the user environment.  For small computing devices, I see this as a huge benefit, and so the iPhone OS isn't a barrier for me, it's a blessing.
  


• Not A Full OS:  Why do you need a full OS for a tablet anyway?  Most are slow enough on more beefy hardware like a laptop, let alone a device built for less power consumption.  I've heard this argument before, and I can't for the life of me see the benefit of a full OS on a tablet vs. a specialized OS for the tablet.  All I can think of is software.  But why would you want to run a full fledged desktop program on a tablet?  Most desktop programs are designed for a mouse and keyboard input setup, which doesn't port over easily to a touchscreen (another reason Flash would be a beast on a tablet).  While you won't find a replacement for Photoshop or Dreamweaver for the iPhone, I wouldn't be surprised if similar apps start to show their heads now that the iPad allows them far more real estate to work with. 
  


• AT&T As The Partner:  Simple:  Don't use them.  The 3G version is open, though there isn't another carrier in the US that will support it, and with a MiFi-type device from any other carrier, you have the same benefits as the 3G version, but on the WiFi only version.  While this could be a valid complaint for the iPhone itself, I don't see it as a problem on the iPad. 
  


• There's No Phone:  VoIP with a headset aside, did you really think you were going to put something this big against your face?  Really?  The iPad and tablets don't replace smartphones, and they are not meant to. 
  


• No USB/SD Card Slots:  This I can see as a legitimate complaint, though the more the device has to power another device connected to it, the more it will deplete the battery.  While it would be nice to have an SD card slot for additional storage or as a way to quickly upload video/photos from a camera, there are adapters out there for SD and USB connections for cameras that upload into their iPhoto app.  And, just between you and me, I have yet to fill my iPod Touch 16 GB and use it all. 
  


• The Name/It's Made By Apple/It's Overpriced:  The name argument is just, well, stupid.  Does it really matter that much to you?  Really?  Well, you can get the Adam if you want, or Nook, or Kindle, or Pete.  Heck, you can call it Pete, or iPete, or RePete.  I don't consider that a real complaint.  Don't want people looking at the name?  Get a skin for your RePete, or better yet, make one.  It shouldn't be that hard, I would imagine.
  
  As for it being made by Apple and you for some reason hate them because of their marketing success, personal bias, or resentment of how they treat Windows as a platform; well, there are lots of other tablets coming to market, each with their pros and cons.  Some with Windows 7, some with Android, and eventually some with the Chrome OS if rumors are true.  If you don't like a product, you can get one elsewhere.  It's not going to hurt my feelings, and it shouldn't hurt yours if I prefer an Apple product or experience.  As long as it does what you need it to do, isn't that really the point? 
  
  Pricing for the iPad is actually pretty standard with most retail outlets.  T-Shirts tend to be marked up 56% or so, as are most other products from the cost of the company to produce them.  That's because they have to pay wages, marketing, distribution, and research.  But if you want something cheaper, I'm sure other companies will cut into their profit margins to accommodate. 

So, that is my list.  Honestly, I see the iPad and other similar tablets taking the place of most netbook functionality because of the new form factor.  I don't see them replacing laptops, netbooks, or desktops completely, as those who don't want to have a desktop computer would probably prefer a laptop for their work (like students in a dorm).  But I don't think that having a laptop, a desktop, and a tablet will be a necessity.  The tablet would make one or the other unnecessary (at least for me), and which depends on your needs.

So tell me what you think.

Chicago Company Aligning Jobs With Autism

NPR has a story on Morning Addition on the 11th, where for some jobs Asperger's Syndrome can be an asset.  The company is called Aspritech, and is a nonprofit company that trains those with Asperger's and others with high functioning Autism to do data entry and computer program testing.  Why these skills specifically?  Because those with Autism are very detail oriented, and repetitive tasks do not become boring.

The article continues with a similar business, from which Brenda Weitzberg (the founder of Aspiritech) took the idea:  Specialisterne, which is a six-year old Danish company.  Both Brenda and Thorkil Sonne (of Specialisterne) started their companies for the same reason:  they wanted opportunities for their children diagnosed with Autism.  They found that instead of forcing a career on their child that didn't fit his abilities, they would find the career that would match those abilities. 

Like other parents of an Autistic child, I worry about the opportunities that will be available for my son.  Every time I watch him work on a project, focus on a task, and find something he likes to go over again and again, I try to match a vocation to that and the steps necessary to get him into that vocation.  And just the thought of other people out there with the same ideas and the same goals helps me feel as though I'm not alone, and there is plenty of hope for my son. 

Well done, Brenda and Thorkil!  Well done.  Thank you.

Oxytocin and Autism: Social Awareness Treatment And Positive Research

Lately the news has been running a story from the Center of Cognitive Neuroscience in Lyon where Angela Sirigu reports those children diagnosed with Asperger's Syndrome who inhale the hormone oxytocin were able to pay more attention to eyes and faces, and were more likely to understand social cues (like being ignored) in game simulations.  It was reported in the journal Proceedings of the National Academy of Sciences. 

Oxytocin is a hormone that is released during the mother-infant bonding process, usually the first social bonding that happens with children in their lives.  The research here identified the need for oxytocin in the system of those children with Asperger's to better identify socially with those around them.  The research was completed with 11 men and 2 women with Asperger's, and the control group was equally as large. 

The research is very interesting, because it identifies and treats a huge hurdle in the lives of those with high functioning Autism:  social awareness.  With the introduction of this hormone treatment, those with Asperger's (at least) can identify with their surroundings socially and more comfortably. 

Of course it requires a hormone inhaler, and hormone therapy can be dangerous if not properly metered and monitored.  There are potential risks to any hormone therapy, and we have yet to see if there are any long term dangers to taking Oxytocin for longer periods of time.  I'm hopeful that there will be no dangers to cancers and other problems that accompany many hormone therapies of other types, because I imagine a lot of parents will be jumping on the oxytocin bandwagon quickly and early. 

But keep in mind that this isn't a cure-all for Autism.  There are a lot of other problems that accompany Autism beyond social interaction.  Currently my son is working through his non-verbal issues, which have little to do with the social aspect of Autism.  So before we all think that we have found a "cure" (really just a treatment to manage Autism), let's take a step back and take the research for what it is:  a sign that there are potential treatments for a real medical disorder. 

Oh, and because it's a real medical disorder, that means insurance companies should cover Autism and it's therapies. 

New Free iPod Touch Apps for Autism: AutismTest, AutismXpress, and Learn To Talk

Today I thought I would look for more apps for the iPhone and iPod Touch that are geared directly to those with Autism.  Previous searches (such as when I last posted about them), there were only a handful.  Today, however, there are tons, and at varying price points. 

Those at the higher end of the price scale were assistive communication tools, like iConverse, and Proloquo2go.  These at any price below $8,000.00 are, believe it or not, a bargain compared to the other options available with the same functionality.  They all try to achieve the same goal:  help make communicating for those who are impaired easier.  And each one succeeds to some degree, though not all are ideal for an individual Autistic child, depending on their placement on the Spectrum.  As a side note, it may be helpful for a free lite version of each of these apps to be made available so parents can test out the mechanics of the app before investing $50.00 to $200.00 on something that their Autistic child is unable or unwilling to use.

Other apps that were listed were First Words apps (which my son loves), and various ABA flashcard apps.  Most of these are in the $0.99 category, though others can be more or less depending on the volume of content in the app.  These I generally tend to shy away from, as my son is beginning to show aversion to using ABA picture cards for communicating (much to the frustration of his teachers).  So today, I thought I would evaluate and write about three apps that I found:  AutismTest, AutismXpress, and Learn To Talk. 

AutismTest

First is AutismTest.  This was one of several Autism screening questionaires I found in iTunes, some for free and some to buy.  This particular one was free.  The test was developed by researchers at Cambridge University for screening, and is used for online screening.  I was rather dubious at first, as Autism is a diagnosis which requires observation from a psychologist, but I thought I would check it out. 

The First thing mentioned in the description is that this is NOT a replacement for diagnosis.  I want to stress that as well.  If you are looking for any services for Autism, or need to focus on a specific learning plan through your school, you need a proper diagnosis from a certified psychologist.  No one will take this score seriously when looking for real treatment.  But, that being said, there has been come correlation between the assessment and an actual diagnosis, so it would be a good place to start if you are wondering if you should consider getting your child screened. 

The test is not very long, and focuses primarily on attention, social ability, and reaction to order versus chaos.  I found it to be well thought out, very well structured, and according to the test, I have autistic tendencies (I'm very much an introvert).  These are much the same traits looked for when screening for Autism, so I thought it would be something worth mentioning.  But let me emphasize again, THIS IS NOT A DIAGNOSIS!  If you are concerned that your child may be Autistic, take them into a psychologist for a screening. 

The app was written by an Autistic parent of an Autistic child as a method of helping people understand what Autism is.  In that way, I would say they have succeeded.  For that reason, I would say that it's a good app to have for the family with an Autistic child.

AutismXpress

One thing that is quite common with Autistic children is the lack of emotional and social understanding.  For instance, they can't tell if you are joking, being sarcastic, angry, or sad.  It just doesn't register.  AutismXpress was created to help them recognize these emotional states. 

The app is essentially a flash card type app, but the faces move.  It's not too stable though, it crashed my iPod Touch twice in 10 minutes, requiring me to reboot the thing.  But other than that, it was fabulous.  I'm looking forward to showing this one to my son.

The app was created for Autism Spectrum Australia (Aspect), which is the largest Autism support organization for Australia.  The work they have done here is phenomenal, and I look forward to a more stable version.  And it's also for free.

Learn To Talk (Lite)

Learn to Talk is a flash card app as well, with artwork that is very much like the old "Dick and Jane" stories (ink and watercolor).  Essentially the card repeats the word, and then you can click on it for the word again, or slide on to another word.  This was priced really high in previous versions, but the price has down for the pay version to $1.99.  The free version is what I tried, and it seemed pretty good.  I'm not sure how my son will take to it though, as he doesn't repeat very easily, but others have mentioned how helpful it is for their children in speech therapy. 

So, those are the apps I tried.  I'm really looking forward to what the iPad will bring with it's expanded real estate on the screen and additional tools available.

Autism. Aspergers, And Definitions: Names Don't Really Matter

Recently the news has been covering a new designation of those with Aspergers syndrome, placing them officially within the Autism spectrum.  Psychologists have long placed them within the spectrum, but they were given their own designation because Aspergers was first identified back in the 1940's.  And now it seems that those with Aspergers are upset by getting placed within the Spectrum officially.  It's almost as though they are losing their identity, their unique place in the world.

Personally, I don't think clinical labels matter in the day to day life of those with Autism.  They still struggle in social settings, have difficulty communicating clearly, and continue to think in a completely different way than neurotypical minds.  But the designations do have some importance, which is why I doubt you will see Aspergers, or any other syndrome attributed to Autism, be completely wiped clean in favor of the general Spectrum designation. 

Firstly, they help clinical psychologists, special education teachers, physicians, and school psychologists know how to best approach a child emotionally, physically, and academically.  Those with Aspergers are less likely to react violently than those with more acute or severe forms of Autism.

Secondly, as genetic research begins to unravel the complex puzzle of the Spectrum, we will most likely find that different genes or gene combinations comprise individual disorders.  This will be huge, and I see it coming down the pipe within the next 10 to 20 years.  Therefore the diagnosis of Aspergers will no longer be based solely on behavior, but also on firm genetic testing.  This will mean very early intervention, early training, and far more success stories of Autistic children being mainstreamed into an education system that will be prepared for their individual needs. 

And lastly, I feel that the designation will live on because those with Aspergers want it to continue.  It's a sign of their unique view of the world, and one that has become a badge of honor.  For that reason, the name will not go away. 

So while the news may be looking for the next big story, the inclusion of Aspergers officially into the Autism Spectrum doesn't make a whole lot of difference.  After all, as Shakespeare penned, "A rose by any other name doth smell as sweet", and a mind, no matter how it is defined, is just as powerful. 

Google SketchUp, Universal Studios, The University of Utah, and Autism

Earlier this week while I was teaching my Mac OS X Support Essentials class, a really good friend of mine sent on an article she read about the University of Utah, Google SketchUp, and Autism.  And just today, as I was returning from administering a certification test, I heard the same news on KSL.  What was said isn't that big of a surprise, but the connections made my eyebrows rise. 

It seems that Google has been getting a lot of feedback with regards to their drafting program, Google SketchUp.  Parents have been reporting amazing work coming from this platform from their autistic children.  It seems that the unique way Autistic people see the world gives them the ability to see and create in three dimensions.  So the University of Utah and Google have teamed up to teach teachers and parents why SketchUp has become such a useful tool, giving children who are generally dismissed because of their ability a chance to show that they have real commercial and marketable skills.  The workshop they are hosting is this Saturday (Feb. 6th) from 10 AM to noon at the Alfred Emery Building (225 South 1400 East in the President's Circle).  It's free and open to the public. 

Now, I'm not surprised that tools like Google SketchUp have become popular with Autistic children, as I can see the engineer in my son's actions and block constructions.  What raised my eyebrows was the collaboration that Google has been willing to do.  Not only do they already provide the basic version of SketchUp for free, but they are actively working with researchers to develop the software with autistic children in mind.  That is commendable. 

If only other companies would take a leaf from Google in this area.  Imagine, if you would, Apple working hand in hand with Autism researchers and therapists to develop iPod Touch and iPad applications that improve communication, learning, and retention among Autistic children.  The iPod Touch is already been proven to be an exceptional and inexpensive (relatively, at any rate) AAC device.  The potential is phenomenal.

So kudos for Google!  I'm looking forward to seeing more companies take charge in developing useful tools for everyone, even if they do think a bit different.

The iPad Impressions: Limits, or Rethink?

For the last couple of days I have been reading a lot about the iPad.  As one author said, there's nothing like Steve Jobs to get people talking about new technology.  Whether good or bad, it's been a huge talking point.

As far as I can decipher the arguments online, it comes down to two different points:

1. Apple is crazy because they have an underpowered Netbook that doesn't even have a full OS on it, and they are going to lose a lot of money.  This is the worst idea in the history of computing, so don't even think about buying one.
   


2. Apple is light years head of the rest of the computing world, and everyone just needs to accept that the future is here.  If you can't accept that, you should hide under your rock of old technology and let the new light of reason shine.

The problem I have with both arguments is that neither have been really objective in their assessment.  Both approached the release based on high hopes, and their own colored glasses.  They have generally based their reviews on past computer experiences, management, and tools, and as such their expectations were colored.  And I freely admit, I was one of them. 

Then I read this article on PC World (of all places) about how the iPad isn't a third device, but a new way of simplifying the computing experience.  It put things in perspective for me, things that I have been thinking about, and trying to formulate.

The main complaints I have heard is that there isn't enough hardware to "do the job".  What job is it you need to do in a mobile environment that requires so much hardware?  Are you editing video?  Can you do that accurately with a netbook, and render it?  I don't think there is enough power there, so you would need a Laptop, am I right?  Even then, often times a desktop would give you the best experience, because that is where real power and speed comes. 

Another argument I hear is that it doesn't have a full OS, so you can't multitask.  There is some room for argument here, but how much multitasking do you really do while on the go?  Those of you who have Android phones, do you really run more than app at a time?  I know you can, but how often do you?  I'm not asking to be mean, I'm really interested in what the numbers would be.  I know there are times I would like to have Skype running in the background while I run another app on my iPod Touch. 

But an interesting answer to the Multitasking argument, and the underpowered OS, etc, is this article on 9to5Mac about a Citrix client available for the iPad.  That's right, they were able to easily turn the iPad into a thin client.  And the resolution is high enough that it will work, unlike a Netbook. 

Another argument I hear is the lack of applications that people want.  What is it you want to accomplish?  Have you searched through the App store to see if there is an App that will let you accomplish your goal?  What about a free app that will work?  I'm impressed with the huge breath of content there, and I'm looking forward to the many iPad specific apps that will show. 

So what is the iPad to me?  It's hard to describe, because each app makes it something else.  In that case, it is a real computer, because it will do what I want it to do, and with a simplicity that will keep me coming back to it, and relegating my desktop for more intense computing needs.  I can write code in a text editor if necessary, access a secure shell client to get into a larger server (like my desktop at home), copy the files there, and run the code.  I have, essentially, a true client computer that becomes a portal to any number of more powerful computers for more intensive tasks. 

I can easily see the iPad becoming a part of my life as a computing portal, instead of just an eBook reader, or just an Email reader, or just a Web browser.  With VNC, Citrix clients, and other such apps being made for the device, I see real potential here.  And I'm still waiting to hear if Blizzard will make a Warcraft app.  ^_^

The iPad: First Impressions

This has been a very long time in coming.  For the past 3 years it has been rumored that Apple will revive the MessagePad, and this time base it off of the iPhone multitouch technology.  It was rumored to be called the iPod Slate, iSlate, iPad, and various other references.  Lots of suggestions and comments were made, wishlists were created, including my own.  Now that I have seen Apple's presentation that was made today about the iPad, I want to go over my list:

1. Reasonable Price:  This was number one, and I think Apple hit it on the head.  At $499 for a 16GB WiFi only device, it's killer.  It's $130 more for a 3G enabled device, which has unlimited use on AT&T for $29.99.  If AT&T would let VoIP work on it, I could replace my cell phone for something far more valuable to me.  Yes, I'd say it's a good price.  ^_^
   


2. Multiple Apps At Once:  This one wasn't even touched on, so it most likely didn't happen.  That's a shame, because a lot of education buyers will want a book that would keep their place while they switch to their document, and then switch back.  No smile for this one.
   


3. iWork:  Woohoo!  The interface looks killer, and the programs are priced well.  You can get any one of the three iWork apps for $9.99, so it's a total $30 for the whole suite.  And it's a full suite, not a watered-down version.  That's killer.  ^_^
   


4. Voice To Text:  We will have to see if the Dragon Naturally Speaking app will work for this.  With a built in microphone, it should, or at least with a microphone jack, so I'm giving it a smile until proven otherwise.  ^_^
   


5. Bluetooth:  This one I'm not going to assume works, though I really hope it does.  Bluetooth is built into it, but there is no indication that one can tether anything to it, nor any mention of a bluetooth keyboard option.  Instead, there is a dock with a keyboard.  Well, we will see. 
   


6. Open 3G/4G:  Yes!  It's immediately open using a GSM microSIM card, and is unlocked!  Anyone can use any service they would like, if they get the 3G model, as long as the service is compatible.  I would say that this is a very good thing, because while I don't have any personal problems with AT&T, I don't want to be a slave to any one price structure.  Though, at $30.00 a month for unlimited use, it's a hard price to compete with.  ^_^
   


7. Display Port:  There isn't a display port, but it's claimed you can hook it up to a projector.  My guess is, it's through one of the docks that was presented, though The coverage I read didn't specify that.  I'll have to verify that to be sure, and find out how much the docks will cost.  Also, will the keyboard dock work on an iPod Touch?
   


8. Access To Stored Files:  The assumption is that iWork files are accessible, and could be shared with versions of iWork on the Mac.  That's what the presentation said, but didn't explain how.  Is it synced?  Do you have access to your stored files?  I don't know, and until I do, I'm going to keep this one with no smile. 
   


9. Full iTunes:  I don't think we have a full iTunes, though it almost looks like it.  I wonder how it will compare. 
   


10. Video Conferencing:  That's a big, fat, no.  Pity. 
    


11. FM Radio:  With 3G this wouldn't be too big a deal, but it still would have been nice. 
    


12. GarageBand for Podcasting:  I guess I'll just have to look for an App for that.
    


13. Battery Life:  I didn't have my hopes up for this one, but boy was I floored with a whopping 10 hours of battery life!  I figure it will be a full day's usage, which is at least twice more than I get from my iPod Touch.  ^_^
    


14. iBooks:  This one has me intriqued...  Will it be a part of iTunes?  Or will it be another application entirely that I can get for free from Apple and use on my Mac as well as on the iPad?  I'd like to be able to add any ePub books I already have into the iBooks reader.  If I can't, then I think I'll stick with Stanza as my default reader, which should look killer on the iPad.  ^_^

So, those are my takes on what was presented.  A lot of it comes from my focus on what I wanted.  Gaming looks awesome, but I'm not a big gamer anymore.  But the thing is, this device is so cool and powerful, I could easily imagine a version of World of Warcraft coming specifically for the iPad.  That would be cool.  But the best thing that came from this device is easily the price.  It's priced right there with a Netbook, and does just about everything I would want from a mobile computing environment.

What's even more exciting is the possibilities made available for the Autism community.  Here is a device, much like an AAC device, and yet it's not in the $10,000 range.  Therefore it's possible to use the already killer AAC software available on the iPod Touch on the iPad, and have it be more functional.  That, to me, is a huge benefit that will probably never get mentioned. 

OSR#1, Chelation, Supplements, And the FDA

On the 17th, the Chicago Tribune posted an article on OSR#1, a "supplement" that is supposed to help autistic children.  Many have claimed it works, and give the compound to their children regularly.  The maker, Boyd Haley, claims that he takes it every day with no side effects, and has been actively marketing it as a method to cure autism. 

The Tribune queried carefully into the supplement, and found the compound was originally developed as an industrial chelation compound, which separates heavy metals.  It was used in the mining industry, and is now being marketed to our little children as, essentially, a vitamin. 

Haley has made claims of safe testing on rats and 10 people, but has failed to produce the studies to prove these tests, either to the Tribune or, interestingly enough, the FDA, which would require such information for the supplement to be sold. 

Now, for those who follow my posts, you know I have a theory of autism that does NOT center around vaccinations, mercury, or heavy metal poisoning.  So chelation in general, being a very risky and dangerous procedure to begin with, is a huge red flag for me.  The second red flag is that the FDA has NO SAFETY INFORMATION FOR THIS SUPPLEMENT!  This just screams scam, snake oil, and even criminal action.  To market a potentially lethal compound to children, CHILDREN, purely for profit warrants at least a good tar and feathering. 

So why am I so enraged by this treatment?  Because the science in the study of Autism has already disproved any claims of mercury as the cause of Autism.  Instead, 22 genes have been identified with Autism behavior.  Autism, true Autism, is genetic, not caused by evil conspiracies within big business to poison our children, and covered up by Governments in all countries for the benefit of these businesses.  That's just absurd to even suggest it. 

Can the results claimed by parents in anecdotal situations be explained then?  Sure!  It's called the Placebo effect.  I'm sure if you gave these same parents sugar pills, told them they are OSR#1, they would see the same "improvements".  Until true clinical trials can be offered in the success of any drug for autism, I reserve the right to tell everyone and anyone to avoid it at all costs.  Don't be taken by snake oil salesmen. 

Oh, and Mr. Haley, shame on you.

Book Review: The Templar Legacy by Steve Berry

First off, I want to point out that I like mysteries, and ancient mysteries are great. There are few organizations in history that have taken the imagination of the world like the Templars, a 200 year old fighting brotherhood that rose quickly, and declined almost as fast. Fascinated with where the story would go, I kept reading.

The writing was great in a lot of areas, but a little, um, forced in others. jumps in logic needed to be made, and sometimes obvious decisions were ho-hummed by the characters for so long it became tedious. There were also some inconsistencies in the way the characters were thinking. Some characters even started to blend in together, and when not specifically identified, were difficult to tell apart. Also, the standard epic formula was pretty transparent, though I admit I look for it in every book I read.

And then the religious agenda was thrown in, questioning the divinity of Jesus of Nazareth. Regardless of your personal beliefs, attacking a religion isn't good form in my book. This was a personal aversion to the obvious bias of the author, and not a reflection of the literary abilities of the author.

But the good parts of the book were fabulous! I loved the historical references, the focus on the past and the future. And the knowledge that each location in some form or another exists today was great. The author clearly did his research. This book kept my attention about 2/3rds of the time, if not one hundred percent of the time.

Apple Tablet or iPod Slate Rumors

With Apple's planned presentation January 27th, there is a lot of speculation about the rumored iPod Slate, the tablet PC that has been highly anticipated for years (at least 3 from when I started blogging about wanting one).  The "details" are trickling in with everyone throwing their expectations and prognostications out there.  Well, I've posted a lot on my end on what I would want in such a device.  So now, in the 11th hour, let me review with some minor changes what I would want out of this iPod Slate tablet.

Must Have's

1. Reasonable Price:  This often is lost on a lot of people.  The thing needs to be reasonably priced for what I get out of it.  If it's nothing more than just a glorified iPod Touch, I'll keep my touch, thank you very much.  Also, if it's priced well within a laptop range, i.e. $700+, then I would even think about getting a laptop instead of the tablet.  It needs to be priced well for the range, about $500 to $600 would be reasonable, in my mind.  I would prefer less, but I could live with something about that price.
   


2. Multiple Apps At Once:  I haven't posted about this before, but I would like to see more than one app at a time run on the device.  For instance, I would love to have, say, Skype run in the background while I surf the web or open a document or email relevant to the discussion.  I'd also like to have chat windows open while working on a document.  Make the thing a great mobile device for work, and I'm happy. 
   


3. iWork or MS Office:  Not sure if MS Office will be likely given their current legal issues, but a version of iWork would be great.  I'm not talking about something for hardcore development, but something that will allow for quick edits and a presentation. 
   


4. Voice To Text:  I realize that this is available through the new Dragon Naturally Speaking app for the iPhone, but it's not there for the iPod Touch, so I want it understood that I would want this on the Tablet.  I don't want it as the only option for text entry on the tablet, but it would be a convenient method for those on the go trying to write a book without actually having to sit and type. 
   


5. Bluetooth:  Yes, both the iPod Touch and the iPhone have Bluetooth, but they are horribly scaled back.  Open it up!  Let me sync my Voyager Bluetooth headset with it, and a Bluetooth keyboard while I'm at it.  Don't restrict the Bluetooth on the device, other than turning off discoverability by default. 
   


6. Open 3G/4G:  I don't like being bound to any one company when I make that big of a purchase.  If I'm going to have something that will use a cellular network, I want to decide which network and which plan.  This isn't anything necessarily against AT&T or any other network, I just want to be able to shop around.  Of course, this means a lot of different issues that Apple may not want to get into, at which time I would say give me the option of not needing a network.  That alone would make me happy. 
   


7. Display Port:  I need a way to attach the thing to a projector.  While there are a number of projectors that use the standard iPod jack, I'd prefer to have something less restrictive.  A display port would make that easy.  After all, this is a device I intend to use in class for presentations.
   


8. Access To Stored Files:  Right now on the iPhone and iPod Touch, apps keep their individual files within the App itself.  If iWork and a number of other apps are to be of any real use, they need to start sharing files.  Even if it's just a single Documents folder or Home folder, that would be fine.  Something that the Dropbox app and similar apps would be able to utilize for quick file syncing through an Internet connection.

Now for the "Nice To Have's"

1. Full iTunes:  I would love to have a full version of iTunes, letting me make playlists while out and about, delete songs, etc. without needing to sync with a computer again.
   


2. Video Conferencing:  This would be cool, if for nothing else than to have a truly portable video calling device.  It was rumored, but others have said that the rumor was just that.  We'll see.
   


3. FM Radio:  There is an FM radio receiver in the iPod Touch, which could easily be activated with software support from Apple.  I'd like that enabled with the Tablet.
   


4. GarageBand for Podcasting:  The tablet would be a killer way to perform mobile podcasting, making it easy to record your audio (and video, if there is a camera), do some quick edits, and upload it while on the road. 

So, that's about it for the tablet.  What else would I like to see come from the presentation?  There's a whole host of things that I would like to see, though most are not likely to be coming. 

1. FM Radio for iPod Touch:  Just turn it on already!  I want to listen to NPR while on my way to work.  I'm getting a lot of reading done, and I do some writing, but that early in the morning, I'd like to listen to some news rather than my neighbor's family issues being discussed loudly on their cell phone. 
   


2. Open Bluetooth for iPod Touch:  Open the Bluetooth to allow me to connect my headset to my iPod Touch, with microphone!  It's a pretty easy thing to do.  Also, enable Bluetooth microphones for the iPod Touch.
   


3. Open Network iPhone:  An open iPhone would be nice to have, one that could go to the network of my choice. 
   


4. Playlists for Videos on Apple TV:  Most likely not going to happen (if at all) until October and the Christmas season, it's still something I've wanted for a long time.  Please, make it possible to play a playlist of TV shows and Movies.
   


5. Games on Apple TV:  Allow gaming on the Apple TV.  Do you want to increase sales?  Have console gaming built into the Apple TV.  It's a simple concept, and one that could even tie into some of the apps available for the iPod Touch. 

So that's it for my list.  Apple, I hope you are listening.  Some of these things I am willing to wait on, but others are critical.  I've already resolved to wait and see what the price tag would be before I decide on buying a tablet.  Just be warned, if it's the same price as a Netbook and a Kindle combined, I'll probably keep my iPod Touch and get a Netbook (thank you free Kindle app for iPhone).

Croquembouche: My Attempt and Observations

Because my birthday was not too far away, and because I was sick for it, I thought I would make a birthday cake that was a little unique.  My friend Joseph told me about his desire to make a croquembouche, and so I thought I would give it a try as well.  After all, what can be so difficult about caramel and cream puffs?  Right?

The Croquembouche is a French cake, used for weddings and other special occasions.  It's made of cream puffs (or similar pastries), and generally glued together with caramel in a conical shape.  There have been other interpretations, but this is the one I have found to be the most common.  Therefore, it shouldn't be that difficult to make and put together.

First off, I cheated with the cream puffs.  I have made them in the past, and I don't mind making them, but I didn't have the time to dedicate to making them.  Instead, I purchased them from Costco at $11 for 110 miniature cream puffs.  So that means all I had to do was make the caramel and then start sticking them together. 

The caramel was simple, being just 2 1/2 cups of sugar with 2/3 of a cup of water, boiled until a very light, golden brown.  Once done, I pulled it off the stove, and started dipping and sticking.  Simple, easy, and I sneaked a couple of cream puffs while I did it. 

One thing I did learn very quickly was to be very careful with the caramel.  It's HOT!  I burned two fingertips in the process.  The cone was not perfect, but then I was a bit distracted while I was putting it together.  That's my excuse and I'm sticking to it.  But it did end up looking pretty good with the thin slivers of caramel I had decorating the sides. 

Then, after it cooled and we had dinner, I gave it a try.  The cream puffs were great, but the caramel made it way too sweet.  I wasn't too happy with the results, and so I may think about using another adhesive, like chocolate, on the next one I attempt.  Who says French cooking has to be difficult?  ^_^

Color as a Therapeutic Intervention for Autism: Study

The Journal of Autism and Developmental Disorders (Vol. 39, Iss. 5, P. 815-818) published an interesting article on the use of colored lenses and colored films to help an Autistic child with color and light sensitivity excel in reading and study.  The article outlined the work of one student, aged 10, who had trouble with bright lights, artificial lights, and other visual sensory issues.  His symptoms were severe in that he would have regular burn-out sessions every few months when he would sleep for days, and awake with a fever. 

Working with a psychiatrist, an educational psychologist, and a pediatrician, the parents helped their child by first using a filter of blue which instantly improved his reading skills, and then eventually giving him blue colored glasses.  his behavior improved, and his ability to concentrate increased.  Reading comprehension and speed increased significantly. 

The best thing about this article is the last paragraph, which states that this isn't a cure for Autism, nor is it ideal for everyone.  It was just found that this one patient, and two others, were able to better perform using the filters than without.  Therefore, before you spend the money on colored classes for your autistic child, have him tested with a psychiatrist and/or psychologist for a scientific approach for color filter treatment.  Perhaps this will help those with visual sensory over stimulation.  Anyway, it was a good article. 

Spectrum Academy: High School for Autistic Minds

This morning I was reading the news in preparation for my day, when I came across the announcement in the Deseret News of the opening of the Spectrum Academy High School for Autistic children in North Salt Lake.  Intrigued, I read on to learn more.  I've heard of it before, as they had a booth at the Autism Autumn Carnival, but I didn't learn a lot about it because my son is far from ready for High School, and we don't yet know what will be awaiting him for Kindergarten this next year (we find out in the coming months). 

The Spectrum Academy is a Charter School currently serving Kindergarten through 8th Grade, specifically for Autistic children.  They are located just West of Redwood Road and at about 600 North.  Because it's a charter school, they have funding from the State and have flexibility in their teaching methods.  While I am a supporter of public school in general, there are situations like disabilities where a special charter school is very useful.  I just have to look back at the incessant bullying and teasing that my older brother went through in public school to know that a special charter school for autistic children would be just what my son would need.  So, I started checking out their website.

On thing I absolutely love is the curriculum information listed for each grades, so parents can see what their children are using, and can tailor their own home experiences to reinforce their learning.  This is what I would expect from the public school system anyway, though it may be a little difficult to locate.  Handbooks for both the students and teachers are available as well.

What's more impressive is the flexibility the teachers have in managing their student's success.  Gone are the rigid rules about sitting up straight, not using toys as a tactile stimulant while learning, etc.  Children are able to take breaks when they need to in order to gain control of their attention when necessary.  The grade system is based on ability, not age, so there is no worries about being left behind while going through the school system.  Wouldn't it be nice if all schools were like that, as they were once? 

All in all, I was very impressed with the news of the Spectrum Academy.  It's a bit of a way out of my way to work, but I think I could make a special trip to get my son there if need be.  The only thing I didn't like was the lack of fee details, and how much fees would cost.  It being Winter Break (I don't know if they can call it Christmas and New Year's break anymore), I can't get firm information on that, but once I do, I will post it.  Until then, this is definitely a school and school system that needs to be watched!  I see this becoming a more common situation as the needs of Autistic children are met. 

Autism Genetics: Autism and Schizophrenia Possible Genetic Opposites?

The Boston Globe had posted an article on the 15th regarding a study that links autism and schizophrenia as genetic opposites.  I have to say, I was dubious at at first, but the article is well worth reading. 

It seems that Bernard Crespi, Philip Stead, and Michael Elliot identified a the same places within the human genome that cause both events.  The difference is in the number of copies the genes the genome has.  For Schizophrenia, there are multiple copies, for neurotypical people, they have just two copies.  For those with Autism, they have just one. 

So, it seems that Autism could be a genetic opposite to schizophrenia, making similar treatments possible at the genetic level.  The research was completed at the Simon Fraser University in Vancouver.  The research is interesting, and it reaffirms the genetic link to Autism.  What's even more interesting, is that once these evidences have been identified, real definitions can be made when it comes to Autism, beyond just the behavioral observance.  Perhaps one day, Autism can be treated as other mental conditions, and families can receive real support in every State.

Autism Christmas Poem

This poem was sent to me by a friend on Facebook, and I had to share it.  Unfortunately, I don't know who wrote it.  If anyone knows who the author is, please post it in the Comments.  I would be happy to give them credit for this wonderful and touching poem. 

Twas the Night Before Christmas
And all through the house


The creatures were stirring
Yes, even the mouse
We tried melatonin

And gave a hot bath
Asleep early for Christmas?
...an unlikely path
The children were finally
All nestled in bed
When visions of Christmas
Ran through my OWN head
Did I get the right gift?
The right color and style?
Would there be a blank stare
Or even, maybe, a smile?
Friends & family come
But they don't understand
The pleasure he gets
Just from bending his hands.
"Just make him stop it," some say
"Just tell him "no",You must learn to be tough.."
On, and on they do go...
We smile and nod
Because we know deep inside

The debate is moot
Let them all take a side
We know what it's like
To live with the spectrum
The struggles and triumphs
Achievements, regressions.

But what some don't know
And what some don't see

Is the joy that we feel
Over simplicity.
He said "hello"!
He ate something green!
He looked me in my eyes
He did not cause a scene!
He peed on the potty!
(Who cares if he's ten)

He stopped saying the same thing
Again and again!"
Some others don't realize
Just how we can cope
How we bravely hang on
At the end of our rope

But what they don't see
Is the joy we can't hide

When our children with autism
Make the tiniest stride
We may look at others
Without the problems we face
With envy, with wonder,
Or even distaste.

What we want them to know
What's important to see

Is that children with autism
Bring simplicity.
We don't get excited
Over expensive things
We jump for joy
With the progress work brings

Children with autism
Try so hard every day

That they make us proud
More than words can say.
They work even harder
Than you or I
To achieve something small
To reach a star in the sky
So, to those who don't get it
Or can't get a clue

Take a walk in our shoes
And I'll assure you
That even 10 minutes
Into the walk
You'll look at us all
With respect, even shock.
You will realize
What it is we go through
And the next time you see us
I can assure you
That you won't say a thing
You'll be quiet and learn
,Like the years I learned too
When the tables were turned.

                        -Anonymous

The Future of eBooks, Books, and Reading: A Historical, Technological, Consumerist, and Hopeful Writer's View

Lately Nathan Bransford, a literary agent and writer that I have been following for some time, has been posting information about the future of books.  With the Kindle, Nook, and the much-anticipated Apple tablet (which I have been blogging about for 3 years in high hopes), it seems that many people are already writing eulogies for the hard copy, bound book.  Often I'm surprise with the comments he receives from his readers, many if not all are writers in various stages of publication (from established to hopeful, like me). 

The discussion has interested me on four levels: as a trained Historian, a trained Computer Technician, an avid Reader (consumer), and a Writer (instructional and hopeful novelist).  Here is my view of each:

Historian

Books as we know them have gone though a lot of changes ever since man had learned to use writing as a method of communication.  What started as tablets of clay became scrolls of paper and papyri, which then changed to parchment and a codex, or bound book.  The codex didn't change for thousands of years, and now a move from the printed to the digital page is being made.  But is it really so recent?

Computers originally had a "monitor" that was a printer, printing out the results of commands as one navigated, executed, and errored their way through programs.  The digital monitor, the one we know and love today, both simplifies the reading of computer results, but also saves a tremendous amount of paper.  And ever since print could be read on a computer screen, people have been reading books on the computer screen. 

So the idea of an eBook is not new, but rather the mainstreaming of the eBook is what is so scary.  Just as ancient Egypt was afraid of the parchment codex (threatened their trade in papyri), those tied to the old methods of distributing the story both fear and hate the coming mainstream eBook consumption.

Computer Technician

The technology for eBooks have been around for years.  I had eReader on my PocketPC for years, and I loved being able to read while on the go.  But before it could become mainstreamed, there are some factors that needed to be met:

1. Battery Life:  The early PDAs were terrible in their battery life.  This hampered reading, as you needed to either change your AA's or recharge your book within just a few hours of getting into it. 


2. Performance:  There are a lot of old eBook readers out there that were so clunky to use they were not worth it.  I went through several before I settled on the couple of eBook readers I use today.  It all came down to performance.  I was looking for something that was easy to use, easy to customize, and had a small memory footprint (so I could have more books in less space).


3. Storage:  What good is it to have an eBook reader if you can only store at the most 10 books?  If you are going abroad, or spend a lot of time commuting, just a couple of books will not satisfy. 


4. Reputation and Appearance:  eBooks needed to have a good reputation behind them, or come from a reputable source.  Often times some books were, or at least appeared, to be bad copies, which creates distrust.

Others may outline more points, but it is my humble opinion that technology needed to advance to this point before the eBook could have even thought of being mainstreamed.  With ebook readers like the Kindle, Nook, and even with current Windows Mobile, Android, WebOS, and iPhone OS devices out there, we have finally made it to the point where big names feel comfortable in releasing their books in eBook form to reach a profitable audience. 

The thing is, dedicated devices are, at least in my opinion, doomed to a quick death.  Part of the reason why I have an iPod Touch instead of a Kindle or Nook is because I need more than just an eBook reader.  eBooks are a convenience, not a lifestyle.  I want other conveniences to be just as convenient, and preferably on the same device.  This is part of the reason why the iPod Slate (or Apple Tablet) is so important to me as a device, and why I have been so keen on it's release. 

Reader

I love to read, but I find that I have little time at home with the kids, and very little time at work.  But I also have a long commute, in which reading becomes convenient.  It's also convenient to work on my novel, get some work done, and listen to my music/old radio shows.  Suddenly carrying around even one bound book can take up more room than I am willing to give, as my bag becomes overloaded with various other devices.  But carrying an entire library in my pocket, which also will play my music, videos, and allow me to do some text editing; that's the way to go. 

Now I've heard the arguments against eBook readers because of eye-strain.  Well, I don't strain any more with an eBook reader on my iPod Touch than I do with any other book, and I can guarantee that, in the dead of night in winter, when the bus or train is dark, I can read my book without having to have a separate light.  I can also adjust the text on the book to make it larger or smaller based on my needs.  You can't do that with a printed book. 

Also, there is the convenience of purchasing and downloading the books.  I have the Kindle app for iPhone, eReader app from Fictionwise, the Barnes & Noble eReader app, and Stanza.  I have tried each one, and my favorite two so far are the Kindle app and Stanza.  Kindle because of it's flow (they have changed it a lot since Amazon purchased Stanza), and Stanza because it's so convenient to download books from the Gutenberg Press (free books in the Public Domain).  They are easy to configure, and easy to manage.  Within a few seconds I will have several new books that I have purchased and downloaded, ready to read.  It sure beats waiting for a book to ship, I can tell you!

Writer

Some day I hope to be published, as soon as I write something that I wouldn't be embarrassed to have someone else read.  I would also like my book to be quickly accessed by those who are interested, and I want to write a story that will flow well enough regardless of which format it is in.  So you can imagine that the interest in eBooks has had me thinking, and I'm watching this very closely.  Adding multimedia components for higher-end readers or computers (like the Slate, hint, hint!) can change a story as much as adding slides to a presentation, or video to a musical performance.  All of a sudden you have more content to relate to, all at the same time.  It's challenging, it's exciting, and it's a little scary. 

So what exactly will be the future of books?  I think most analysts out there are right:  the codex book will not be going away anytime soon.  There is a feeling of intimacy that comes from reading a well-worn and well-read book again and again that you don't get from an eBook.  Because of this a good hardcover or even paperback will not go away entirely.  But I think you will see a huge shift from the published book to the eBook by casual readers in particular.  The idea that one can turn on their device while waiting in line, riding a bus, or riding in the back seat of a car, read a couple of pages, and then turn around and do something else when the need arises?  It's huge, and it's happening more every day.  Add always-on 3G or 4G networking and integrated media, and you have a revolution that will absorb the mainstream out of pure convenience. 

Are there problems?  Of course!  But there were problems with first Gutenberg Press, the codex, the papyrus scroll, and even the clay tablet.  The real question is not whether or not we will manage with what we have, but rather how soon it will take the industry to adapt and make the situation better. 

Holiday Travel, Disneyland, and Autism: Avoiding the Meltdown For My Son

The Holidays are stressful, to say the least.  There are lots of people you don't normally see during the year that visit and occasionally stay, there are shopping trips, decorating chores, moving furniture, and big stints in the kitchen cooking meals and lots of fatty goodness.  All this extra stimulation is compounded when traveling. 

Now, I love to travel, as does my wife.  We spent a lot of time on the road, and both of us have flown enough times to know that the flight and a long haul on the road can be stressful for everyone.  That goes especially for those children with Autism. 

Now, this is not meant to be the one answer for all children with Autism, as each one is different.  This is what works for my son, so I thought I would share it.  If it's any help for anyone else, by all means, you are welcome to it.  But if your son doesn't respond to this type of travel or these travel tips, hopefully it will help you identify what might help. 

We have taken my son on both an airplane and in the car to San Diego, and he has handled both methods with stellar success.  It all comes down to how we get him to focus his mind, and how to keep his attention on those things he can control so he doesn't have to worry about those things he can't control. 

First off, we find A toy, not many toys, that he likes and will use the longest.  In the past this has been the water pen and tablet tools, or the magnetic stylus and slates.  Both are great because he can practice his letters and numbers, work on his writing, and it keeps his mind off the close quarters of both the car and plane.  Now we use the iPod Touch and the various apps he likes on that.  It's like having 20 different toys for him in one location, and each application we have for him is geared to help him learn something. 

Next, we have some snacks for him, usually fruit snacks.  Anything he will eat is fine, and he loves fruit snacks as a finger food (cottage cheese gets a little messy ^_^).  Finally, we make sure he is comfortable.  We sit with him, talk him through the experience, and walk him through each step as it comes up so he is prepared with what he needs. 

Now, Autism and Airlines have not gotten along in the past.  Southwest infamously forced a family with an autistic child off their planes and stranded them.  And people can be very, um, intolerant with children in general.  As such my wife and I have seen flying as a second option over driving. 

So we purchased a large enough vehicle to fit the family and a few extras for luggage, toys, food, etc.  I'm not saying it will work best for you, but it may work overall.  If you drive, keep in mind that children need to get out and stretch their legs.  Don't eat through the drive-through, but rather get out and eat if you can.  If you can't eat at the establishment you chose, look for a city park or something similar and have a picnic.  The exercise and open spaces can help reduce the stress of close quarters for long periods of time. 

As an example, my wife and I spent the last week in California at Disneyland and in San Diego.  We chose to drive, as we have a very fuel efficient vehicle for it's size.  It took us 12 hours to drive from Salt Lake City to Anaheim with all the stops for eating, changing the kids, and letting them run around for exercise. 

Disneyland was great, particularly because of a special pass available for anyone who is unable to stand in long lines for long periods of time.  It's called an assistance pass, and was definitely helpful for our son.  Instead of waiting for 40+ minutes in line, we were able to go right up to the ride.  For those rides with Fast Passes, it would work as a fast pass.  For those rides without a fast pass (i.e., the new Finding Nemo ride), we would enter through the accessibility entrance, and get placed as soon as possible. 

To get the pass, enter City Hall there at Main Street, and explain the disability your child has, and what would happen if they were to wait in long lines.  The distribution of the pass is not based on disabilities, but rather the results of the disabilities when waiting in long lines.  If you do get one, though, don't abuse it!  We want this pass to remain available for all children with Autism, so make sure you use it judiciously.  We chose to use it only on a select few rides, as our son could manage a 20 minute wait (just not 25, it turned out). 

Well, I hope this ends up being helpful.  If anyone else has any good recommendations that you don't see listed, feel free to post them!